A StoryCorps presentation about a young woman with an amazing spirit, who was born with CHARGE syndrome.
In this StoryCorp piece, heard on AM 1370 and WRUR-FM 88.5 on Friday, January 24, Lionel D'Luna, daughter Adrienne and wife Debra remember their daughter and sister Alexis, who died in 2012 of complications from CHARGE syndrome.
To hear the piece, click here.
This special segment is the kind of programming Dialogue on Disability hopes will prompt more discussion about the amazing abilities of people with physical and intellectual disabilities. Dialogue on Disability is a partnership between WXXI and Al Sigl Community of Agencies, which is supported by the Golisano Foundation and part of Al Sigl’s Herman and Margaret Schwartz Community Series, funded by the Fred L. Emerson Foundation.